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Madison Smith's Website - Viewing Journal - Monday, November 29, 2004 9:30 PM
Thank you for taking time to inquire about Madison and how she is doing. Madison was diagnosed with high risk T-cell Acute Lymphocytic Leukemia on September 24, 2003 at Duke Hospital in North Carolina. She had just turned three at that time. Leukemia is a blood cancer that is not believed by medical professionals to be inherited at this time. She presented with a mass in her chest that encompassed the majority of the upper half of her chest area. The mass was related to the leukemia. It collapsed her left lung and a portion of her right lung and was shutting off the blood flow from her heart to the rest of her body. She was in the pediatric intensive care unit for almost two weeks on a ventilator. We weren't sure then if we would ever have a chance to fight the leukemia. Madi is a true fighter and pulled through! After getting off the vent, Madison was able to achieve remission by the 28th day of treatment. She underwent two and half years of aggressive chemotherapy (protocol 1961) and radiation for the mass. On Christmas Eve 2005, a little over two years after her diagnosis Madison had a chest CT done that revealed that the mass was finally gone! Madison finished her treatment in January 2006. Children that have cancer are not considered "cured" until they have been off treatment with no-reoccurrence for five years. Duke has followed Madison throughout her treatment. She will continue to be followed by Duke. In April 2008 Duke uncovered that Madison has an obstruction in 3 of her veins. The veins involved are the Left innominate vein, the left (lower) internal jugular vein, and her sub-clavian vein. These veins are responsible for carrying her blood back to her heart and hers are 100% occluded. What is going on with her right now is likely a result of the mass she had in 2003. There aren't really any easy fixes for what is going on with her and no real cases that it can be compared to. We are working with Duke in an effort to resolve this issue. In February 2011, Madi moved from in-remission to "CURED" from her disease We've come this far for a reason! Please continue to lift all of us up. The care and concern that we have felt from all of you continues to be an encouragement to us. Thank you...
 
- Allison

Update - Monday, November 29, 2004 9:30 PM


We hope all of you had a wonderful Thanksgiving. We certainly did! We were able to spend it with friends and family. It originally appeared that we were not going to be able to go on our scheduled trip because Madi's counts were too low. We had them checked again the Friday that we were supposed to leave and they had miraculously recovered! I say miraculously because on Monday the 15th they were barely over 100 and needed to be over 500 for us to travel. On Friday that same week they had jumped to over 2000. We have never seen them jump quite that much at once. She must have really wanted to go!

Our trip went extremely well. Madison felt good the whole time we were gone until the trip home. We had to make an emergency stop at Louisville Kentucky's Children's Hospital on Saturday. During the trip home Madi spiked a fever and Duke required that we stop there and get an IV antibiotic and have her counts checked again. Her counts were 760 so they didn't admit her (Thank God). Duke however, required us to go there on Sunday for more IV antibiotic.

Madison had to go to Duke again today (Monday) for her regular chemo. Unfortunately, due to the fact that her counts were only 200 today and that her stomach was already upset, she was unable to get any of her chemo. They have also asked us not to give her any of her regular chemo at home this week. She will have to go back to Duke next Monday to see if they can restart everything.

For right now, once again she will be confined to the house until her counts go back up. Once again, if she gets another fever she will have to be admitted. We will pray that, that won't happen. At least now if it does we are home and will be able to go to our normal facility as opposed to one we have not been to before.

Madi's sister Maiya has also been to the doctor today and she has a pretty nasty cold. Hopefully Madi won't get it. Duke felt that there was no reason to separate the two of them because Madi has already been exposed and if she's going to get it, she's going to get it. Sort of a “too late now” kind of thing.

Thank you for continuing to keep us in your prayers. Please pray that we can make it through another cold and flu season without too many problems.

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