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Madison Smith's Website - Viewing Journal - Tuesday, April 6, 2010 5:35 PM
Thank you for taking time to inquire about Madison and how she is doing. Madison was diagnosed with high risk T-cell Acute Lymphocytic Leukemia on September 24, 2003 at Duke Hospital in North Carolina. She had just turned three at that time. Leukemia is a blood cancer that is not believed by medical professionals to be inherited at this time. She presented with a mass in her chest that encompassed the majority of the upper half of her chest area. The mass was related to the leukemia. It collapsed her left lung and a portion of her right lung and was shutting off the blood flow from her heart to the rest of her body. She was in the pediatric intensive care unit for almost two weeks on a ventilator. We weren't sure then if we would ever have a chance to fight the leukemia. Madi is a true fighter and pulled through! After getting off the vent, Madison was able to achieve remission by the 28th day of treatment. She underwent two and half years of aggressive chemotherapy (protocol 1961) and radiation for the mass. On Christmas Eve 2005, a little over two years after her diagnosis Madison had a chest CT done that revealed that the mass was finally gone! Madison finished her treatment in January 2006. Children that have cancer are not considered "cured" until they have been off treatment with no-reoccurrence for five years. Duke has followed Madison throughout her treatment. She will continue to be followed by Duke. In April 2008 Duke uncovered that Madison has an obstruction in 3 of her veins. The veins involved are the Left innominate vein, the left (lower) internal jugular vein, and her sub-clavian vein. These veins are responsible for carrying her blood back to her heart and hers are 100% occluded. What is going on with her right now is likely a result of the mass she had in 2003. There aren't really any easy fixes for what is going on with her and no real cases that it can be compared to. We are working with Duke in an effort to resolve this issue. In February 2011, Madi moved from in-remission to "CURED" from her disease We've come this far for a reason! Please continue to lift all of us up. The care and concern that we have felt from all of you continues to be an encouragement to us. Thank you...
 
- Allison

Update - Tuesday, April 6, 2010 5:35 PM


April 6 2010 11:15 p.m.

Madi has been doing great since last update! She goes for her six month check up with her cancer doctors April 22nd. Physically, she has been doing better than she has ever done and we have every reason to believe that this appointment will go great! Madi will be considered off treatment for five years in December of this year. Making it to this point is a huge milestone and will move Madi from the status of " in remission" to a status of "CURED"! Yes, we're excited about this!

Home school has gone beautifully this year for Madi. Quite honestly, I also believe that it has been extremely contributory to her better health in general. While she is not migraine free, we've seen drastic improvement in this arena. We had a follow up appointment with her Pulmonologist in February and even her lung functions were better than they've ever been. We've seen a few lung issues with the crazy pollen flying but her doctor went ahead and prescribed her some new meds to get her through this season change without issues. So far, those meds really seem to be working.

Howard's father, Doyle was unfortunately diagnosed with cancer of the billiary duct in March of this year. He has had major surgery and will be discussing next steps later this week. Please keep him and my mother in law, Lib in your prayers.



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