Home Sign Our Guestbook View Madison's Pictures View Madison's Journal Archives Contact Us
Madison Smith's Website - Viewing Journal - Thursday, July 30, 2009 4:46 PM
Thank you for taking time to inquire about Madison and how she is doing. Madison was diagnosed with high risk T-cell Acute Lymphocytic Leukemia on September 24, 2003 at Duke Hospital in North Carolina. She had just turned three at that time. Leukemia is a blood cancer that is not believed by medical professionals to be inherited at this time. She presented with a mass in her chest that encompassed the majority of the upper half of her chest area. The mass was related to the leukemia. It collapsed her left lung and a portion of her right lung and was shutting off the blood flow from her heart to the rest of her body. She was in the pediatric intensive care unit for almost two weeks on a ventilator. We weren't sure then if we would ever have a chance to fight the leukemia. Madi is a true fighter and pulled through! After getting off the vent, Madison was able to achieve remission by the 28th day of treatment. She underwent two and half years of aggressive chemotherapy (protocol 1961) and radiation for the mass. On Christmas Eve 2005, a little over two years after her diagnosis Madison had a chest CT done that revealed that the mass was finally gone! Madison finished her treatment in January 2006. Children that have cancer are not considered "cured" until they have been off treatment with no-reoccurrence for five years. Duke has followed Madison throughout her treatment. She will continue to be followed by Duke. In April 2008 Duke uncovered that Madison has an obstruction in 3 of her veins. The veins involved are the Left innominate vein, the left (lower) internal jugular vein, and her sub-clavian vein. These veins are responsible for carrying her blood back to her heart and hers are 100% occluded. What is going on with her right now is likely a result of the mass she had in 2003. There aren't really any easy fixes for what is going on with her and no real cases that it can be compared to. We are working with Duke in an effort to resolve this issue. In February 2011, Madi moved from in-remission to "CURED" from her disease We've come this far for a reason! Please continue to lift all of us up. The care and concern that we have felt from all of you continues to be an encouragement to us. Thank you...
 
- Allison

Update - Thursday, July 30, 2009 4:46 PM


Journal

July 30, 2009

Madi will be having her bronchoscopy at Duke tomorrow (Friday) at 8:00 a.m. This should be an outpatient procedure and should shed some light as to what is causing her lung disease. We are trusting and praying for God's perfect will for the procedure and the outcome.

Thanks for lifting us up!




Journal

July 16, 2009

Madi has been doing much better! This week she went back to Duke to follow up with her pulmonologist. They repeated her blood work and her chest X-Ray. Both were back to normal. We are going to have a bronchoscopy at Duke sometime in the next three weeks. We are awaiting a call from them to let us know what the finalized date is. The procedure will likely shed some light on what exactly is obstructing her airway and causing her to have Obstructive Airway Disease. It will also help identify whether her new diagnosis is reversible with treatment or irreversible. This procedure will be out patient but she will have to be put to sleep for it.

Madi’s headaches have been pretty steady again lately. We’re keeping a close eye on them and managing them with migraine meds as needed.

Last weekend we went fishing in Hilton Head, SC. All we caught were SHARKS! Madi caught the biggest one! I will attempt to post the picture on the site, so check it out. It’s pretty amazing! If it’s not there, bare in mind that I am technologically challenged among other things! ~Sorry~

Thanks for keeping us in your prayers

Thank you for taking the time to check our site, please sign our guestbook.