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Madison Smith's Website - Viewing Journal - Monday, November 3, 2008 4:04 PM
Thank you for taking time to inquire about Madison and how she is doing. Madison was diagnosed with high risk T-cell Acute Lymphocytic Leukemia on September 24, 2003 at Duke Hospital in North Carolina. She had just turned three at that time. Leukemia is a blood cancer that is not believed by medical professionals to be inherited at this time. She presented with a mass in her chest that encompassed the majority of the upper half of her chest area. The mass was related to the leukemia. It collapsed her left lung and a portion of her right lung and was shutting off the blood flow from her heart to the rest of her body. She was in the pediatric intensive care unit for almost two weeks on a ventilator. We weren't sure then if we would ever have a chance to fight the leukemia. Madi is a true fighter and pulled through! After getting off the vent, Madison was able to achieve remission by the 28th day of treatment. She underwent two and half years of aggressive chemotherapy (protocol 1961) and radiation for the mass. On Christmas Eve 2005, a little over two years after her diagnosis Madison had a chest CT done that revealed that the mass was finally gone! Madison finished her treatment in January 2006. Children that have cancer are not considered "cured" until they have been off treatment with no-reoccurrence for five years. Duke has followed Madison throughout her treatment. She will continue to be followed by Duke. In April 2008 Duke uncovered that Madison has an obstruction in 3 of her veins. The veins involved are the Left innominate vein, the left (lower) internal jugular vein, and her sub-clavian vein. These veins are responsible for carrying her blood back to her heart and hers are 100% occluded. What is going on with her right now is likely a result of the mass she had in 2003. There aren't really any easy fixes for what is going on with her and no real cases that it can be compared to. We are working with Duke in an effort to resolve this issue. In February 2011, Madi moved from in-remission to "CURED" from her disease We've come this far for a reason! Please continue to lift all of us up. The care and concern that we have felt from all of you continues to be an encouragement to us. Thank you...
 
- Allison

Update - Monday, November 3, 2008 4:04 PM


November 3, 2008 10:00 pm

Last Wednesday Madi went to Duke for the three tests that she had scheduled. Specifically, an EKG, an Echo, and a Metabolic Exercise Test (an extensive stress test). She made it through all of the tests. We had a few concerns surrounding her ability to actually complete the Exercise Test as it is very exhausting. We thought this because on a normal day she doesn’t have a lot of energy. Our concerns were unfounded and she was definitely able to perform the test.

We’ve been told that the Echo and EKG were fine. We will go this coming Friday to have the results of her Metabolic Exercise test interpreted. I do know that on the heart side of things, it looked good. On the pulmonary function side of things they said that her results were “clinically significant” but they had seen worse. They didn’t say a whole lot more. The clinician said that she would be taking Madison’s results to both her Cardiologist as well as her pulmonologist and they would discuss them prior to our meeting on the 7th. I will keep all of you posted as I have new answers.

The third grade started off a little rough for Madi but at last she seems to be adjusting just fine. We got report cards on Friday and I am pleased to say that Madison managed to pull off straight A’s! We absolutely didn’t anticipate this but were very happy for her. She will have an award program on Wednesday this week.

Please keep us in your prayers.



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