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Madison Smith's Website - Viewing Journal - Wednesday, December 27, 2006 2:31 PM
Thank you for taking time to inquire about Madison and how she is doing. Madison was diagnosed with high risk T-cell Acute Lymphocytic Leukemia on September 24, 2003 at Duke Hospital in North Carolina. She had just turned three at that time. Leukemia is a blood cancer that is not believed by medical professionals to be inherited at this time. She presented with a mass in her chest that encompassed the majority of the upper half of her chest area. The mass was related to the leukemia. It collapsed her left lung and a portion of her right lung and was shutting off the blood flow from her heart to the rest of her body. She was in the pediatric intensive care unit for almost two weeks on a ventilator. We weren't sure then if we would ever have a chance to fight the leukemia. Madi is a true fighter and pulled through! After getting off the vent, Madison was able to achieve remission by the 28th day of treatment. She underwent two and half years of aggressive chemotherapy (protocol 1961) and radiation for the mass. On Christmas Eve 2005, a little over two years after her diagnosis Madison had a chest CT done that revealed that the mass was finally gone! Madison finished her treatment in January 2006. Children that have cancer are not considered "cured" until they have been off treatment with no-reoccurrence for five years. Duke has followed Madison throughout her treatment. She will continue to be followed by Duke. In April 2008 Duke uncovered that Madison has an obstruction in 3 of her veins. The veins involved are the Left innominate vein, the left (lower) internal jugular vein, and her sub-clavian vein. These veins are responsible for carrying her blood back to her heart and hers are 100% occluded. What is going on with her right now is likely a result of the mass she had in 2003. There aren't really any easy fixes for what is going on with her and no real cases that it can be compared to. We are working with Duke in an effort to resolve this issue. In February 2011, Madi moved from in-remission to "CURED" from her disease We've come this far for a reason! Please continue to lift all of us up. The care and concern that we have felt from all of you continues to be an encouragement to us. Thank you...
 
- Allison

Update - Wednesday, December 27, 2006 2:31 PM


December 27 2006

Journal

We hope all of you had a wonderful Christmas! We were able to spend with family out of town and have truly had a really nice time.

Madison has been doing pretty well. She was really looking forward to Christmas break. It is now almost over. It always seems to go so quick.

Since last update, Madison went to Duke for her December appointment. December marked her being off treatment for one year. Her appointment went fine and her labs looked wonderful. By hitting the one year mark we now will only have to go once every two months. This is good, but maybe a little scary!

We went for a second opinion on her back/spine issues that we have been worried about. That orthopedic feels that it is something that needs to be monitored very closely for changes. He was reluctant to call it scoliosis but said if it is we have found it very early. He suggested that Madison start horse back riding as that particular activity has been proven to be one of the best types of therapy for what she has going on. Because scoliosis is a noted late effect of Chemotherapy they will watch her close for the next few years. Madi’s granddaddy has horses and we are going to bring one of the pony’s to the house. Of course, we need to build a fence first. Not sure when that will happen, we always have so much extra time!!! Yeah right!

Madison went in for lab work this morning. It seems as though she may have a urinary tract infection. We are still awaiting her results. If it’s positive, they will just call in something to the pharmacy for her.

Last update, we mentioned that our dog Butch got hit by a car on our way back from Disney. It knocked his front elbow out of socket. His leg was casted for about a month and it was recently taken off. He is doing okay, but still isn’t using that leg much.

I finally made a decision to accept a position with a new company. My company decided that they wanted us to become independent contractors starting January 1st without benefits. That doesn’t particularly work so well for me. As a result I will be able to keep my 1099 contract with my old company (Foresters) and take a new W-2 contract with AXA Equitable. I will be doing the same thing and hope that I have made a good decision. I guess time will tell. Job changes stress me out!!!!

We wish you all a wonderful and prosperous new year! Thanks for caring!

Please continue to keep our family in your prayers.


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